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Andrew's Story
This is the story of Andrew and
his search for some normalcy and self-independence. Andrew was born in
1987 and was six weeks early. There were many complications and setbacks
and he spent extra time in the hospital.
Andrew might have had seizures from the beginning; however, since babies
don't come with manuals and most people think of seizures as grand mals,
we don't know for certain. When he was quite young he was diagnosed with
petit mal seizures. We never did get a grip on the seizures with all the
medicines we tried. One medicine gave him tremors, so you give him
something to offset tremors and then the tremors keep him from sleeping at
night, so you give him something so he can sleep at night, but that makes
him wet the bed so you give him something to keep him from wetting the
bed. Yes you get the point. At one time he was taking 31 prescription
pills daily and still no seizure control.
We moved to Oklahoma, from Missouri, and found a new doctor. This doctor
was a joy!!!! First prescription he gave him Andrew went blind. Then he
thought there was something under his skin and he tried to stab it with a
fork. Several fork wounds later I called the doctor and said well he is
blind now, has lost 20 pounds, has added both grand mal and drop seizures,
and has fork wounds. I want him off the medicine. He told me he needed a
psychiatrist. Psychiatrist agreed with me, get him off the meds. Then I
was labeled an uncooperative mother. Well this is a mother that has seen
her child go through near death seizures, blindness, anorexia, attempted
suicide (yes I didn't tell you about that one) and other things while on
the meds.
We found a new doctor and this doctor let us know he had been misdiagnosed
all along. He was not suffering from petit mals but complex partials and
due to the fact that he had gone improperly diagnosed all this time he now
suffers from grand mals as well. Andrew is home schooled due to his
disability. He is unable to attend classes at the junior high school as
they are unable to follow directions for a medical doctor. While Andrew is
able to take one medicine at this point it is not enough to control his
seizures. We just had to go off one of the other medicines as it has
caused liver damage to this young boy.
Andrew wants a very active social life but has a very low self-esteem. He
is unable to attend functions that other normal teenagers attend. He is 16
and cannot drive. He cannot find a job that will hire him due to his
disability and yet according to Social Security he isn't disabled. He
can't swim without lots of adult supervision. He cannot ride a bike any
longer, he can not walk to a friend's house by himself. He cannot take a
bath or shower without someone constantly knocking on the door to make
sure he is ok. His self-esteem is very low as he fears he will never find
a girlfriend, drive, move out on his own or have any kind of life where he
isn't watched constantly.
Andrew never causes any troubles, he does his chores, but must be watched
while doing them. He has no privacy. He wants to live like every other
teenage boy. He wants to play Nintendo in his room with his door closed.
He wants to be able to walk to his friend's house. He wants to be able to
go swimming with his buddies at the lake. He wants to be able to reach and
turn on the stereo without going into a grand mal seizure and knocking
down an entertainment center and hitting his head repeatedly on the stereo
till he is moved. He wants to be able to talk to the neighbor without
going into a grand mal seizure in the neighbor's yard.
We can help him do this by providing him with a seizure alert service dog.
These dogs are very high price and we have found much of the money
already. What we are working on now is the travel expenses back and forth
for training and the remainder of the money to give this teenage boy
someone to love and cherish. Someone that is his best friend. Someone that
will help give him some privacy and self-esteem back.
What is a seizure alert service dog you ask? There is a certain chemical
that someone releases before having a seizure. A properly trained and
pre-disposed dog can determine this and help get his owner to a safe
location. A seizure alert dog will stay with Andrew while he has the
seizure and bark for help. He will lay on top of him to keep him from
thrashing around and getting hurt. A seizure alert dog will go in the
bathroom while Andrew is showering and will alert him to the need to get
out of the tub if a seizure would be coming upon him. A seizure alert dog
will go with Andrew at all times. There is hardly any down time for this
precious animal. A seizure alert dog will give Andrew back much of his
life and let him live more like a normal healthy american teenager. This
dog will play Frisbee with Andrew and fetch and turn out lights and remind
him to take his medicine. Yes they can be trained to remind them to take
their medicines. They are even trained to relieve themselves on command.
Andrew is 16 years old and wants his life back. He wants a chance to be
normal and feel secure in his life. Thank you for your time and interest.
May you be blessed.
Lisa, Dan, Kaylin, Andrew & Pepper


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